The elevator to success is out of order. You'll have to use the stairs...one step at a time. ~Joe Girard

Spreading Awareness

My purpose in writing this blog is to spread awareness and provide support to parents of children with and without special needs. I have one child with a Learning Disability, more specifically, a Visual Processing Disorder including Dysgraphia and another child with a disease called Eosinophilic Esophagitis, an allergic white blood cell disease that attacks the esophagus.

Wednesday, January 12, 2011

Biopsy after Food Introduction

After being an elemental (EO28Splash) only diet for 10 months, Andrew began eating food in late October.  As I had mentioned in a previous post, he started with bison, but soon had symptoms, so we eliminated it and began sweet potatoes.  He has since been introduced to peaches and broccoli as well.  We had to eliminate the broccoli after a week due symptoms.  The sweet potatoes and peaches have remained a constant, seemingly causing no symptoms.

He had his first biopsy after the food introduction on January 30.  The results, although not positive for EE (>15), were 11 eos per hpf.  This is elevated from his pre food introduction biopsy of less than 5 eos per hpf.  The scope was done only 2 weeks after stopping broccoli, so our doctor said that CHOP reccommends to stop the last food that caused symptoms, but not take out the other foods.  So at this time Andrew will continue with the sweet potato and peaches.  He was also allowed to begin another new food yesterday from the "A List" given to us from our doctor.  He chose one of his old favorites, grapefruit.  It was so wonderful watching his pure joy eating it for "dessert" last night.

That is our plan for the immediate future for Andrew.  However, as all of you with children with EE know, nothing with EE is ever uncomplicated.  As I had mentioned before, he began symptoms with the broccoli a week after beginning it.  One of the symptoms was a constant stomach ache.  This stomach ache has continued even though he has been off broccoli for about a month.  He has battled problems with constipation in the past and is on Mirolax daily, but when they took an abdominal X-ray at the hospital it was clear.  The GI feels that it may be functional stomach pain, but I'm just not convinced.  There is never a dull moment with these kids.   If anyone has any ideas I would love to hear them.

Well, here's to hoping grapefruit will be a successfull food!

2 comments:

  1. Good luck with grapefruit. I really hope that it goes well for him.
    Allergy Mum - http://allergymum.blogspot.com/

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  2. Thank you for your positive thoughts!! Our fingers are crossed.

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