Well, as you know, he didn't pass his scope, so he didn't get to add a food...but we still decided to keep our reservations and go to Disney anyway. We discussed this decision with Andrew because we would be eating at least 1 meal a day in a restaurant, and he would have to go with us and sit at the table and drink his Splash juice box. This is something we have not done with him since he has been on this elemental diet. He assured us that it was okay, that he just really wanted to ride the rides anyway--"isn't that what Disney is really about?"
So off we went. Well of course things can never be easy. Andrew ended up sick our first day there. I knew he either had a sinus or ear infection. I tried calling our pediatrician, but our primary pediatrician was out for the week and the one that was available would not listen and told me we had to be seen in Disney. Because Andrew is getting ready to start the high dose of steroids and has chronic sinus issues, I felt confident his primary would have called in a prescription, but the doctor in the office would hear nothing of it. So then I had to find out the dose of the antibiotic pill that Andrew takes because he can not take the liquid or chewable because he becomes symptomatic while on them. After that we had to find an Urgent Care in Disney. Believe it or not, Disney does not employ their own physicians. So to make a long story shorter, we spent 2 hours the next morning (the waiting time alone that evening was 3-4 hours) at Urgent Care for the doctor to tell me that my son had an ear infection, and then for me to tell him the exact medicine and dosage my son needed due to his EE. But, since we happened to be there, I had them give him a shot of Rocefin to speed up the process so our whole trip wouldn't be miserable. I do have to say it was interesting because while we were waiting for the shot, the doctor came back in to ask me questions about EE. He said he had never had a patient with the disease before and wanted to learn more. Anyway, it would have to be the child with EE to get sick! He has not been sick once this winter since he began the elemental diet, and boom, go to Disney and right off the bat!
