I feel it fitting to start this post with an update on Andrew's status. Andrew began food after 9 months of an elemental diet last fall. He has failed 4 trials by symptoms and had "passed" peaches and sweet potatoes with 12 eos per high power field in January. On May 5 he had another endoscopy with biopsies after trialing pinto beans and grapefruit. To our delight, the results were the best he has ever had...0-1 eos per high power field in all three sections of the esophagus. For a child who at one time has had so many eos that the pathologist could not count them on the biospsy slide, this is truly amazing. Actual remission, even if he is on 60mg of prevacid and flovent each day. What a way for us to prepare for National Eos Week! And Andrew was able to celebrate by adding Lamb to his diet. I wish I could have captured the pure joy on his face while eating that lamb chop so that when he is in the hospital or in pain I could take it out, look at it and remember there will be more days like this.
Please help spread awareness for this frustrating disease so that the children and adults suffering can someday enjoy lives normally once again. People who suffer from eosinophilic disorders can not tolerate food proteins. Many of them that are on elemental diets can only eat dum dum lollipops. Although they are not yet safe for Andrew, he will still be passing them out to spread awareness tomorrow. Won't you join him?
Just a Glimpse
Video by APFED
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