National Eosinophil Awareness Week - Day 3

Today Andrew and I wore our Eos T-shirts to school.  We also passed out dum dum lollipops to help spread awareness for these disorders.  I was pleased when several teachers asked me what my shirt said and I had the opportunity to educate them, if even just a little, on EGIDs.  The student's in Andrew's classroom (and mine as well) were full of questions.  I continue to be proud of how well Andrew handles his disease and now of the advocate he is becoming.  It is so very important for the people that are suffering from this disease that awareness is spread.  Please take time to write to your congress person tomorrow to remind them that this is National Eosinophilic Awareness Week.

Thank you to everyone that continues to support us!

This is a video put together by another Eos family.

Just......Imagine a Cure!!

National Eosinophil Awareness Week - Day 2

Today is the second day of National Eosinophil Awareness Week.  My goal was to post something each day no matter how busy I was.  I have already missed my goal, but I am going to work hard to obtain it for the rest of the week.

I feel it fitting to start this post with an update on Andrew's status.  Andrew began food after 9 months of an elemental diet last fall.  He has failed 4 trials by symptoms and had "passed" peaches and sweet potatoes with 12 eos per high power field in January.  On May 5 he had another endoscopy with biopsies after trialing pinto beans and grapefruit.  To our delight, the results were the best he has ever had...0-1 eos per high power field in all three sections of the esophagus.  For a child who at one time has had so many eos that the pathologist could not count them on the biospsy slide, this is truly amazing. Actual remission, even if he is on 60mg of prevacid and flovent each day.  What a way for us to prepare for National Eos Week!  And Andrew was able to celebrate by adding Lamb to his diet.  I wish I could have captured the pure joy on his face while eating that lamb chop so that when he is in the hospital or in pain I could take it out, look at it and remember there will be more days like this. 

Please help spread awareness for this frustrating disease so that the children and adults suffering can someday enjoy lives normally once again.  People who suffer from eosinophilic disorders can not tolerate food proteins.  Many of them that are on elemental diets can only eat dum dum lollipops.  Although they are not yet safe for Andrew, he will still be passing them out to spread awareness tomorrow.  Won't you join him?

Just a Glimpse

Video by APFED